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Senate Bill 97 Reporting Requirements for Parkinson's Disease

Effective July 1, 2018, Senate Bill 97 creates a mandatory requirement that a health provider that diagnoses or provides treatment to a patient with Parkinson's disease must report each case of Parkinson’s disease to the California Department of Public Health (CDPH).

According to the CDPH, this data will be collected to “expand our understanding about Parkinson’s disease, and provide ultimate clues to the causes and risk factors of the disease, and ultimately improve the lives of Parkinson’s patients.”

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In April, the CDPH released the initial version of the California Parkinson’s Disease Registry Implementation Guide. It provides further information and details on this mandate. Information, such as, who is required to report, the timeline for reporting, and the methods available to report are included in this report. With the deadline fast approaching, we encourage all applicable providers to review the document as soon as possible. In addition, before a provider can report a Parkinson's case will first need to register on the website.

Providers who diagnose and treat Parkinson's patients can register here.

To view the California Parkinson’s Disease Registry Implementation Guide, click here

August 7, 2018:  A new update to the Implementation Guide is now available (Version 3.0, August 2018).


Authored by Kimberly Danebrock, JD, RN, CPPS
Cooperative of American Physicians, Risk Management & Patient Safety